What Fatigue with Rheumatoid Arthritis Really Feels Like
October 02, 2024
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Photography by Duet Postscriptum/Stocksy United
It’s hard to concisely explain fatigue and the ways it might affect your life. Here’s what those living with rheumatoid arthritis (RA) say.
RA can affect you in many ways.
Often reported as one of the worst symptoms, fatigue is also highly common, with roughly 70% of people living with RA experiencing it at some point.
A list of medical symptoms and information is always helpful. But sometimes this doesn’t always reflect the true reality of what fatigue can feel like, nor the extent to which it might affect your life.
So, let’s give the power back to you — those living with RA — and learn from your experiences and expertise.
It throws plans out the window
It’s hard when your body has different plans to your diary. It can feel like everything is out of your control.
While sticking to a treatment regime and figuring out your own lifestyle hacks can always make a big difference with RA, fatigue can come and go as it pleases, with little respect for your prior plans.
“It comes on suddenly and puts an end to any plans.”
– CariJane, diagnosed with RA in 2015.
“The fatigue is brutal! It’s hard to do anything with a schedule.”
– NanaB, diagnosed with RA in 1999.
It can make you feel disconnected
When you’re fatigued, your body can sometimes feel completely disconnected from you.
Talking with your body positively and saying affirmations can be very powerful. This might help work with your fatigue, but sometimes your body might feel like it’s doing its own thing.
“My brain tells me I need to get going and get things done, but my body says let’s sit down, my legs feel heavy. I can’t be productive and I’m not be able to do the things I always use to.”
– jcutler, diagnosed with RA in 2005.
“I feel as though I’m pulling my awkward exhausted body with me wherever I go, and whispering “Come on now, we can do this!”
– Carolina, diagnosed with RA in 2021.
It can be draining
Fatigue is exhausting, and you can feel completely depleted.
This can sometimes make it hard to muster motivation and complete tasks.
“It drains me physically and mentally.”
– April, diagnosed with RA in 1970.
“Sucking the life right out of me.”
– Stgirl, diagnosed with RA in 2016.
“I don’t have any motivation to do to much.”
– claire windle, diagnosed with RA in 2018.
It’s overwhelming and all-consuming
Fatigue is not just an isolated symptom, but it accompanies you throughout your day.
“Fatigue can be overwhelming. Accepting and understanding when to let your body rest is important.”
– Jewlz, diagnosed with RA in 2022.
“My fatigue effects every part of my life, from participating in a conversation to taking care of daily activities and more.”
– Janet80, diagnosed with RA in 2024.
Even when you aren’t fatigued, it can make you worry
Sometimes, you might have fears about symptoms you’ve never had.
“I’m an artist and I’m worried that fatigue will stop me from painting. I was just diagnosed a few months ago, so I don’t have much experience with RA yet.”
– Signe, diagnosed with RA in 2024.
The takeaway
RA fatigue can be relentless.
It can make you feel isolated, but remember that you’re not alone. It’s a very common symptom and one that affects those living with RA in different ways.
Finding remedies that work for you can take time. Be kind to yourself during this process.
For some RA fatigue remedy inspiration, check out these resources:
What Is RA Fatigue? Symptoms and How to Cope
5 Fatigue-Fighting Tips from the Bezzy RA Community
Medically reviewed on October 02, 2024
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